Count Us In
Scientific breakthroughs are strongest when they reflect the full diversity of human biology. Yet many valuable cohorts, datasets, diseases, and populations remain underrepresented in biomedical discovery.
Count Us In is a foundation that helps institutions participate in biomedical discovery on their own terms, expanding the representative biology that powers better science.
The data gap
The datasets that guide AI development, drug discovery, and clinical research often represent only a fraction of the world's biology. Many populations, diseases, research cohorts, and healthcare systems remain underrepresented in the evidence that shapes modern medicine.
When important sources of biological insight are missing from research, discoveries may not generalize across the patients and communities they are intended to serve. Better science starts with a broader foundation of biology.
Representation in research is not a nice-to-have. It is a scientific and ethical requirement.
What Count Us In is
Count Us In helps institutions participate in biomedical discovery on their own terms, connecting valuable cohorts, datasets, and expertise with the global research community while preserving stewardship, recognition, and local governance.
Hospitals & Health Systems
Contributing longitudinal and clinical data
Biobanks
Linking specimens to discoverable datasets
Academic Researchers
Advancing validation and discovery
Data Custodians
Controlling how their data is shared and used
Life Sciences Partners
Building on diverse, representative cohorts
How it works
Every institution participates on terms that reflect its own governance, priorities, and goals.
01
Join the Foundation
Become part of a growing community expanding participation in biomedical discovery.
02
Show What Makes Your Cohort Unique
Help researchers understand the populations, diseases, datasets, and expertise your institution represents.
03
Define Participation on Your Terms
Retain control over governance, access decisions, and how your contributions are used.
04
Support Discovery & Impact
Enable approved research that helps broaden the representative biology behind future discoveries.
What participation gives you
Data Sovereignty
You define access. You approve use cases. Your governance frameworks are respected, not bypassed.
Full ownership retained
Equitable Partnership
Co-authorship, acknowledgement, and direct collaboration, not just data supply. Your contribution is recognised.
Not extraction, but partnership
Recognition
Be recognised as part of a global foundation advancing more representative biomedical discovery.
Global Visibility
Your institution and datasets become discoverable to researchers and partners worldwide, with full attribution.
Scientific Impact
Help ensure future discoveries are informed by the populations and communities you serve.
Capacity & Infrastructure
Access to tools, frameworks, and expertise to make your data more interoperable and research-ready.
Who it's for
Data Custodians
Primary audience
Hospitals, ministries of health, national biobanks, and research institutes ready to participate in biomedical discovery without giving up stewardship of their data.
Researchers
Academic & institutional
Scientists and institutions who need diverse, representative cohorts to produce findings that hold across populations.
Health Systems
Regional & national
Regional and national health bodies seeking to ensure future research and precision medicine reflect the populations they serve.
Biopharma
Industry partners
Companies developing and validating therapies who recognise that representative evidence is essential for better research, development, and patient outcomes.
Governance & Infrastructure
Participation is not a commercial arrangement. You are not selling your data. You are choosing to make it discoverable, and you define exactly what that means.
GeneVault supports the Count Us In Foundation by providing technical infrastructure, interoperability services, and scientific expertise that enable secure, governed participation in biomedical discovery.
The Foundation is structured around a model of regional stewardship and local governance. Regional Councils, representing contributing institutions across Africa, South Asia, the Middle East, Latin America, and beyond, exercise governance authority over how data contributed within their geographies is accessed and used. A Global Council provides independent oversight across the programme.
Your institution remains in full control of its data. Always.
Research & Biopharma
Access datasets through governed pathways only
Technical infrastructure
Secure · Interoperable · Compliant · Enabled by GeneVault
1 partner of several
Data Custodians
Retain ownership · Set terms · Approve all access
GeneVault's role
Join the Foundation
Count Us In Foundation brings together institutions, cohorts, and research communities committed to ensuring biomedical discovery reflects the full diversity of human biology.
Whether you are exploring participation, contributing representative datasets, or interested in supporting the Foundation's mission, we'd love to start a conversation.
No commitment required to begin. Start with a conversation.